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Team Zavier
Team Zavier
Story
💜 Step Up for Zavier – Our Little Warrior 💜
Hi everyone,
We are taking part in Step Up for Epilepsy to raise awareness and much-needed funds for epilepsy, a condition that has been a huge part of our beautiful boy Zavier’s life.
Zavier is our amazing 10-year-old little warrior. His epilepsy journey began when he was just 6 months old, when he was diagnosed with West Syndrome. Since then, epilepsy has continued to be a huge challenge for him and our family.
Zavier lives with complex disabilities and a rare genetic condition, and he experiences severe and difficult-to-control seizures. He has undergone countless hospital admissions, procedures, medications and treatments in the hope of giving him a better quality of life. He also had a VNS implanted in 2023 to help manage his seizures.
Despite everything his little body has been through, Zavier continues to amaze us every single day. He is the strongest little boy we know. 💙
Zavier is non-verbal, unable to walk and uses a wheelchair, but that never stops him from enjoying the things he loves — being outdoors, spending time with his cousins, cars, dirt bikes, dinosaurs and, of course, watching Bluey. 🦕🏎️💙
Epilepsy doesn't just affect the person having the seizures. It affects the entire family. There are the hospital admissions, sleepless nights, constant medication schedules, fear of the next seizure and the uncertainty of what the future may hold.
We are stepping up for Zavier and for every other child and family living with epilepsy.
💜 Every donation, no matter how big or small, will make a difference.
If you are unable to donate, simply sharing our fundraising page would mean so much to our family and help us spread awareness about epilepsy.
Thank you for supporting our little warrior and helping us Step Up for Zavier. 💜
Our Little Warrior, Zavier.
10 years of strength, courage and fighting. 💙💜
Epilepsy WA
Since 1963, Epilepsy WA has been tirelessly raising awareness and providing vital information and support to West Australians living with epilepsy, their families, and carers. There are over 30,000 West Australians currently living with epilepsy. Epilepsy is one of the most common, yet often misunderstood, neurological conditions, affecting up to 1 in 25 people, whilst 1 in 10 of us will have a seizure in our lifetime. Epilepsy WA help those living with epilepsy by providing a range of support services and we constantly strive to bring epilepsy out of the shadows and reduce stigma. With your help, we will continue to do so for another 60 years and more! We rely heavily on the support of the community to help us continue offering vital support services to the WA community. Visit our website to learn more about our services and supports. We are the only WA based epilepsy association, exclusively servicing WA. We are in WA, for WA. Please consider making a tax-deductible donation today and help us support the 30,000 West Australians living with epilepsy. Every dollar donated in WA, stays in WA.
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